Competitive Runner

Katie is a 20-year-old competitive runner from Dublin. Due to an aggressive form of epilepsy, she experiences up to 14 seizures a day. Despite her condition, Katie hasn’t let anything stand in the way of her love for running. With the help of her neurologist, who doubles as her running partner, Katie is never steered off course. With each seizure, she is able to bounce back and keep on going. She has been diagnosed since she was 9 years old, with 2 types. She has gone from a wheelchair to running shoes. Every day can be interesting but every day she picks up her running shoes and lives the day to the fullest. Most the rime she trains alone but for her big races she runs with her neurologist who is also her running partner. She doesn’t let anything get in her way of living life. A great plan put together a support group made of doctors loved ones and a team. A great diet and a exercise plan. Goals set and achieved.

With over 40 different kinds of epilepsy out there its not uncommon for people to be diagnosed with more than one type. For those who have no idea what it is however it is very common for people to assume to call 911 or jump to the worst conclusion of what epilepsy is. The simple word “epilepsy” when googled or just read looks scary. When seen having an Convulsive attack looks SCARY which IT IS but most do not know what to do or how long to wait or anything about it except what it looks like.

Click the Link below Please and watch to know what to do if you witness a seizure and have have the Knowledge of what to do Thank You.

https://youtu.be/XyDHG02phs0

Please continue Sending me your story’s to share with others. Even if you do not think your story is worth sharing you’d be surprised you can inspire. Love to hear from anyone including the friends, doctors, loved ones, anyone from any point of view. Please leave a comment send me a email by pushing the contact button to send me an email. Lets share with the world how Strong we are all together. WE do not know how strong we are until is the only choice we have Epilepsy Awareness.

Dublin Ireland-thank you Google

Invisible Strength

Looking at the Beauty in Every Day

Today I just wanted to start with a “Hello”. I walk through life every day like everyone else and 99% of people wouldn’t take a second look at me, or even guess that I have a medical condition, because it doesn’t put me in a wheelchair or I don’t have to use crutches. It is an invisible illness that if you pay attention you can see it in my everyday life. There are many people with this same medical condition, different types not every person handles it the same. There is over 40 different types of seizures. More than 50 million people worldwide have epilepsy, making it one of the most common neurological diseases globally. Nearly 80% of people with epilepsy live in low- and middle-income countries. It has been estimated that about 1.2 percent of U.S. people have active epilepsy. This comes out to about 3.4 million people nationwide, and more than 65 million globally. Additionally, about 1 in 26 people will develop epilepsy at some point during their lifetime. Thinking about that it doesn’t mean that it will stay for long knowing that it doesn’t mean it will go with a blink of an eye. The scariest thing to add on to all this to think about is epilepsy can begin at any age from anything. It is estimate that 1 out of every 1.000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). About 22,000 to 42,000 deaths in the U.S. each year occur from these seizure emergencies. What is SUDEP you ask? Great question! SUDEP stands for
Sudden Unexpected Death in Epilepsy. Scariest thing to happen to a parent to watch their child die and not to be able to do anything besides know they did everything they could. To be the husband or wife and watch or wake up to your loved one gone. or watch that one last seizure and a medical team try and save them and not be able to do anything. The sibling unsure how to help but all sudden your brother or sister isn’t there anymore. There is so much research being done but so many types of seizures and alot still un-found and still trails and errors. Seizures are still something people are scared of and when comes to the job market people run from the word seizure and don’t listen to anything. they picture the worse they don’t want to get the rest of the education. So many types if seizures out there and none are the same. For me I can do anything anyone else can do I just need my 8 hours of sleep to refocus and breath. I need to be able to de-stress and at times i need a few more breaks but I will speak up when I need to recenter and breath, sometimes takes me little bit longer to learn what I need to but that is why I take notes. For others it may not be as easy everyone has their own strengths and weakness and we all have our own voice.

https://www.epilepsy.com/connect/forums/products-resources-helpful-links/over-40-different-types-seizures-revised