Category: Having your own voice

Ketogenic Diet and other recipes

Eating healthy for some comes easy for others its hard. As there are many diets people have talked about are ketogenic diet. The Ketogenic Diet is a high fat, low carbohydrate, controlled protein diet that has been used since the 1920s for the treatment of epilepsy. The diet is a medical treatment and is usually only considered when at least two suitable medications have been tried and not worked. With the ketogenic diet, the body mostly uses ketones instead of glucose for its energy source.  The diet is not for everyone but is suitable for many different seizure types and epilepsy syndromes, including myoclonic astatic epilepsy, Dravet syndrome, infantile spasms (West syndrome), and those with tuberous sclerosis. If you or your child has feeding problems, or has a condition where a high fat diet would cause problems, the diet then probably isn’t suitable please consult your doctor or nutritionist.

Here I want to discuss some great recipes to try. Even if you do not want to do the Keto diet. These are great to try as I will have other post that have great recipes to try out and are healthy and easy to make. Here is a link for try for Ketogenic Diet or as others just say Keto diet recipes.

https://www.allrecipes.com/recipes/22959/healthy-recipes/keto-diet/

One the food I wasn’t sure about in the Keto diet was the Shirataki Noodles I am not sure if its because of the name, maybe cuss its something that I haven’t tried in a long time or not something that I have been interested in. Here I am now re-looking at something that I have tried long ago and didn’t have an issue then just wasn’t what I was use too. Now I am going to try it again as I am doing my best to eat healthier. The noodles are Soy Free, Gluten Free, and Vegan for all those that care about that stuff. For me I care that they contain less than 1 gram of carbs and 5 calories per serving, also Viscous fiber forms a gel that slows down food’s movement through your digestive tract. This can help decrease hunger and blood sugar spikes, making it beneficial for weight loss and diabetes management. This noodles comes in amazing uses and forms Rice,  fettuccine and linguine. I mean who cant use this and make some amazing recipes at more than half the cost to not just your body in what normal noodles do to you but the cost in budget for food. I found a few links on amazon to get them. DID YOU KNOW, you can get a subscription to have things send to you monthly I mean I knew it but i didn’t know you could get it set up for food items such as this. Here is the link I found I would so encourage you to try it out and remember amazon if you do not like it you can send it back no questions asked!

A tofu shirataki noodle salad with a rainbow of veggies and shrimp in a tasty Korean-style dressing that is served cold; perfect for a hot summer day!

Here is the recipe for above image ….

Cooking Directions

Ingredients

For the dressing:

  • 2 Tbsp. rice vinegar or lime juice
  • 1 Tbsp. reduced sodium soy sauce (gluten-free or tamari for gluten-free)
  • 2 tsp. toasted sesame oil
  • 2 tsp. gochugaro (Korean chili pepper flakes) or aleppo pepper or red pepper flakes
  • 2 tsp. sesame seeds, toasted
  • 2 cloves garlic, chopped
  • 1 tsp. honey or sugar
  • 1 green onion, finely sliced

For the salad:

  • 1 pkg. House Foods Tofu Shirataki Noodles, drained and rinsed
  • 8 ounces cooked shrimp, peeled and chilled
  • 4 cups lettuce, shredded
  • 1 cup cucumber, julienned
  • 1 cup carrot, julienned
  • 1 cup red cabbage, shredded
  • 1 yellow pepper, julienned
  • ¼ cup green onion, sliced
  • ½ cup kimchi (optional)

For the dressing:

  • Mix everything together.

For the salad:

Tofu Shirataki Spaghetti

Made from a blend of tofu and konnyaku (or konjac), an Asian yam, Tofu Shirataki Spaghetti contains 10 calories, 3g of carbs, and 2g of fiber per serving. 

Tofu Shirataki Spaghetti is:

  • Gluten free
  • Non-GMO
  • Vegan
  • Keto friendly
  • Great for soups, salads, pasta, stir fry’s

you can buy it here or at local grocery store that carrys it https://www.house-foods.com/products/shirataki/tofu-shirataki/tofu-shirataki-spaghetti

Traditional Shirataki

Made from konjac, an Asian yam, this traditional Japanese noodle contains zero calories. Gluten free, non gmo, vegan and keto friendly

you can buy it here or at a local grocery store https://www.house-foods.com/products/shirataki/traditional/traditional-shirataki

In school and my epilepsy

I had my first real epileptic seizure when I was 5 years old. My mother says my eyes were rolling and I was staring off into the distance. She was terrified. What do I remember from then now is nothing but stories I hear.

What I had is called a “petit mal” seizure or an “absence” seizure. It’s called that because there’s a lapse in conscious activity for a couple of seconds. It’s different from a “grand mal” seizure, when people have convulsions. That’s what most people think of when they think of epilepsy. A petit mal seizure may not sound like much, but it’s still dangerous because you can drown or have some other kind of accident in those few seconds. But my epilepsy hasn’t really stopped me from doing things. I’m in high school at a public school. Most kids at my school don’t even know I have epilepsy — you know, I dress normally and act normally. I’m an honor student at my high school; I have a 3.48 grade point average. I’ve been playing soccer for five years, and I bowled on a team for three years. I’m a Girl Scout, and I volunteer for the Red Cross as well as for a drug abuse prevention program. After I graduate from high school, I want to go to college to become either a forensic investigator or a lawyer. There are days I want to hide in a bathroom stall let nobody see my siezures or anything because I want to be the “normal” average teenager. I then look around and remember nobody is normal cuss normal not a robot. Everyone is different and nobody is the same. Siezures are a part of me and I have nothing to hide everyone else has to accept all of me or don’t say you accept me if you can’t handle my siezures cuss that is apart of me. It’s like the saying goes “If you can’t take me at my worst then u can’t have me at my best”. 

I don’t think epilepsy has to stop me from doing what I want with my life. I used to be afraid to tell people about my epilepsy, but after having a seizure at school in middle school, I realized that people needed to know, that I needed to share safety tips with them. They need the information just as much as I needed the information.

So if there are other kids out there who have epilepsy, here’s what I want them to know: “Don’t be worried about what others may say about you,” and “You’re not the only one who has epilepsy and epilepsy doesn’t have you”.

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Please continue SHARING your stories and I will continue to support and write and share with others. Thank you so much for sharing. Please if anyone else wants to share there please do 🙂 thank you

Invisible Strength

Looking at the Beauty in Every Day

Today I just wanted to start with a “Hello”. I walk through life every day like everyone else and 99% of people wouldn’t take a second look at me, or even guess that I have a medical condition, because it doesn’t put me in a wheelchair or I don’t have to use crutches. It is an invisible illness that if you pay attention you can see it in my everyday life. There are many people with this same medical condition, different types not every person handles it the same. There is over 40 different types of seizures. More than 50 million people worldwide have epilepsy, making it one of the most common neurological diseases globally. Nearly 80% of people with epilepsy live in low- and middle-income countries. It has been estimated that about 1.2 percent of U.S. people have active epilepsy. This comes out to about 3.4 million people nationwide, and more than 65 million globally. Additionally, about 1 in 26 people will develop epilepsy at some point during their lifetime. Thinking about that it doesn’t mean that it will stay for long knowing that it doesn’t mean it will go with a blink of an eye. The scariest thing to add on to all this to think about is epilepsy can begin at any age from anything. It is estimate that 1 out of every 1.000 people with epilepsy die from SUDEP each year. People can also die from prolonged seizures (status epilepticus). About 22,000 to 42,000 deaths in the U.S. each year occur from these seizure emergencies. What is SUDEP you ask? Great question! SUDEP stands for
Sudden Unexpected Death in Epilepsy. Scariest thing to happen to a parent to watch their child die and not to be able to do anything besides know they did everything they could. To be the husband or wife and watch or wake up to your loved one gone. or watch that one last seizure and a medical team try and save them and not be able to do anything. The sibling unsure how to help but all sudden your brother or sister isn’t there anymore. There is so much research being done but so many types of seizures and alot still un-found and still trails and errors. Seizures are still something people are scared of and when comes to the job market people run from the word seizure and don’t listen to anything. they picture the worse they don’t want to get the rest of the education. So many types if seizures out there and none are the same. For me I can do anything anyone else can do I just need my 8 hours of sleep to refocus and breath. I need to be able to de-stress and at times i need a few more breaks but I will speak up when I need to recenter and breath, sometimes takes me little bit longer to learn what I need to but that is why I take notes. For others it may not be as easy everyone has their own strengths and weakness and we all have our own voice.

https://www.epilepsy.com/connect/forums/products-resources-helpful-links/over-40-different-types-seizures-revised

The Journey Begins

Thanks for joining me! Please keep an open mind and share your story’s just send me a message and I can keep your name anonymous, change your name, or share your name. We are here to share our story’s of strength and let everyone be more aware of what is strength. Even when we feel we are at our weakest we have many others who are here to support us. This blog is a way to support others all over the world, and share what is just one of the many disabilities that isnt seen at first glance on an every day basis. Also there will be information that not everyone knows and can learn from. As well as other information. So please feel free to send a message, share your story. This is for those with and those who are family and friends supporting their loved ones. We are all living together supporting one another.

Good company in a journey makes the way seem shorter. — Izaak Walton

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